As past, current, or future patients, the public should be the health care system's unwavering focus and serve as change agents in its care. Taking this into account, the quality of health care should be judged not only by whether clinical decisions are informed by the best available scientific evidence, but also by whether care is tailored to a patient's individual needs and perspectives. However, too often it is provider preference and convenience, rather than those of the patient, that drive what care is delivered. As part of its Learning Health System series of workshops, the Roundtable on Value & Science-Driven Health Care hosted a workshop to assess the prospects for improving health and lowering costs by advancing patient involvement in the elements of a learning health system.

Table of Contents

Front Matter
Synopsis and Overview
1 The Learning Health System
2 Clinical Research, Patient Care, and Learning That Is Real-Time and Continuous
3 Clinical Data as a Public Good for Discovery
4 Engaging Patients to Improve Science and Value in a Learning Health System
5 Health Information Technology as the Engine for Learning
6 Patients, Clinical Decisions, and Health Information Management in the Information Age
7 Applying Evidence for Patient-Centered Care: Standards and Expectations
8 Team-Based Care and the Learning Culture
9 Incentives Aligned with Value and Learning
10 Common Themes and Opportunities for Action
Appendixes
Appendix A: Workshop Agenda
Appendix B: Biographical Sketches of Workshop Participants
Appendix C: Workshop Attendee List
Appendix D: The Learning Health System Series: Workshop Common Themes
OTHER PUBLICATIONS IN THE LEARNING HEALTH SYSTEM SERIES

Patients Charting the Course - heftet, Engelsk, 2011