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The Right to Know and the Right Not to Know
pocket,
2014,
Engelska,
ISBN 9781107429796
The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, …
The Ethics and Governance of Human Genetic Databases
pocket,
2013,
Engelska,
ISBN 9781107652576
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large …